...day 2 of Asher telling me he has a headache...but he has a cold (snot and cough)...this morning he also said his tummy hurt, but I think he was just overly hungry...just watching him, closer than normal...

update
Asher's first grade teacher called me at 11am, the kids' lunchtime. She said she noticed Asher's eyes fluttering today.... Once I get a hold of my emotions, I will talk to her more about it, probably after school.

Just doing some reading, after my first reaction being - the fluttering is due to his scarred retinas - however I don't know everything and didn't see it happen. Read this on a website: If when he has the eye fluttering he stops his activities and stares, it could represent a seizure. Which is what I mentioned to Annie today when I called her about these things, and of course what put my emotions in instant panic when the teacher called. But, maybe it could just this bad eyesight, especially if he had just come out of the sun and into the classroom (although it a very cool, cloudy day for us today).

update
I talked with Asher's teacher after school and she said Asher was reading in front of his class. It was his day to share his journal. He was standing in front of the class reading, looking down at his paper and then back up at the class, and then back down at his paper. She said all of a sudden he put one hand to the side of his temple, near his eyes, and then both of his eyes fluttered. She said both her and her student teacher noticed it. The teacher said, "Asher, are you okay?" and then he said, "Yes!" He responded immediately and it doesn't seem like a seizure to me. Sounds like a focusing problem....poor eyes.

Anyway....when we were home an hour or so he said, "Br, I'm cold," and sure enough, he had a 101 fever....so I am sure all this crap is just because he's sick!! What a relief!!!

Today around 12:15pm Asher was sent to the school nurse by his teacher. She noticed his hands shaking while reading a book. They had recently come in from recess after lunch. The nurse looked him over, said his eyes were fine and he was otherwise fine, and sent him back to class. She said it could be low blood sugar but she didn't think so because he had just had lunch. I think it was fatigue, most likely, after reading these two websites.

http://wiki.answers.com/Q/Why_do_your_hands_tremble_after_exercise

http://www.merck.com/mmhe/sec06/ch091/ch091c.html

4/20 - talked to Asher's teacher tonight - she said she hasn't seen anymore tremors - she did tell me it was in one hand, she thinks, as he was holding a book with one hand and pointing to a word with his other hand and the whole book was shaking - I'm thinking I don't need to worry unless I see it happen again....

Asher has always held his pencil between four fingers and his thumb in his right hand. The kindergarten teacher sent a "this is how you hold your pencil" diagram home with him several times last year. I did try to get Asher to hold his pencil correctly, but I felt in my heart that it just didn't matter. 'Heck, I'm just happy he's holding a pencil and writing words I can read,' I always thought. This year the first grade teacher hasn't said anything to me, even though his letters are somewhat hard to read at times (he can be quite sloppy about writing). A couple of weeks ago I set his pencil in his hand the correct way, and told him to try it, but it didn't last. Well, check out this photo! I was watching him do his homework last night and all of a sudden I noticed he was holding his pencil correctly!!! I was so excited I had to get a couple of photos! Today he told me his friend and classmate, Aaron, helped him. Well, whoever did it, yay! I'm just hoping he doesn't find it too difficult to form his letters now and he sticks with it. Three years out of treatment, it is looking like he's going to have some fine motor skills back that seemed permanently gone the last few years.

Asher is now 2 1/2 years post treatment. This past Thursday, he had his brain and spine MRI at 9am. It was the first one four months after the last one. Prior to this we were on a three month schedule. The extra month didn't really feel that much longer.

MRI/anesthetic went fine.

Friday we asked to have results over the phone because we needed to move from COBRA to our new insurance on 10/16 (effective 11/1). We would have stayed on COBRA till the end of the year if Asher needed anything medical done since our out-of-pocket was already met for this year.

Annie called us back at 5pm Friday and told us the results were clear, stable, no changes since last MRI.

I'll have more formal results (and maybe even some lab results) after clinic at the end of the month.

Kids go back to school tomorrow; we had a nice 'fall break' last week.

Couldn't believe it had been three months already, since the last eye checkup. So, back we went, today, after school. The eye doctor said his vision is 20/20 in the right eye and 20/200 in the left eye (slightly better than 20/400 three months ago). She said his eyes are aligned well. I did tell her I saw his right eye cross in some, but not recently, and she said it was probably due to the patching. We had done some patching right away, but once school starts we just gave up. She said try to do some patching on the weekends, at least, but she isn't going to push. Asher has physical limitations in his eye (the retinal scarring), so we just don't know the extents of those limits, to his vision, or how things will change. He loves wearing his glasses and pretty much wears them all day while he is up; the doctor was content with the protection that his glasses will give his good eye. Next eye checkup is in 6 months....although we will have to see what our new health insurance will cover. I certainly want to keep going to Dr. Peters; I respect her.