Posted by Steph in
0 Kindergarten, 1 Year Post-Treatment, on Monday, August 4. 2008 at
Before I knew it, it was 6:30am, and Alexa had come down stairs, and then Asher did too. His alarm hadn't even gone off yet. I had gone upstairs to get the girls dressed and then help Asher when his alarm went off. I smiled at Asher, "Go turn it off." Then, after he got dressed, I washed his hair (bath night before, wash hair in morning), and then made him (and all 3 other kids, since they were up) breakfast, scrambled eggs, pancakes, bacon and milk. While Asher ate, I told him I made his lunch and put it in his backpack. I told him to remember to take his lunch pack out of his backpack when he got to class and put it in the green basket by the door, where we learned to put it last Friday. I asked him his classroom room number and he knew it. I added one little bottle of water to the side backpack pocket; the rule says they can have a bottle of water as long as it is just water. I had bought these plastic bottles with flip tops (which is the drinking part of the top of the straw) so I could save money and just refill the bottles each day instead of buying Caprisun or juice boxes. While the kids finished eating (or tried to hurry and finish), I went out and got the wagon out of the garage. Now I was getting rushed. It was near 7:15am. It was about time to walk to the bus stop. I quick brushed Asher's teeth and told him to get his shoes on (dad helped him finish) while I got the girls and babiest A in the wagon. We were off. Walking very fast, and sweating in the 45% humidity, 85 degree morning.
Got to the bus stop, which is about 1200 feet away from our driveway, maybe, and waited. No other kids were there. One mom with two boys came and asked me if this was the bus stop and I told her I thought it was (she only lived 2 houses away from the intersection). We waited. Scott drove by, told me it was 7:24 on the car clock (bus was to come at 7:27). We waited some more, and more. I got a few pictures, and a video of Asher talking to Andrew in the wagon. The mom there with her two boys left and went back home. I waved to a neighbor, or two, or three. One neighbor I waved to and got her attention and asked her the time. 7:37am she said. Hmmmm, had we missed the bus? Waited a bit more, ALMOST started back home when I saw the bus coming from the south street. It stopped across the street from where we were and put out its stop sign.
I told Asher, "There it is. Lets look for cars. OK, lets go." I asked the bus driver, a nice lady, if she was going to SL. She said yes and wanted to know what grade Asher was in. She asked his name then. Then she said, "OK Asher, sit right here (indicating for him to sit in one of the front seats)." I said, "Bye Asher" and tears started to fill my eyes. He didn't say bye, he didn't look back, he just got on the bus. I went back across the street where I had the wagon still. I did turn and look to see if I could see Asher as she drove away, but I couldn't, and then tears started to stream down my cheeks.... As we walked, I cried.... Seriously, weird, I did not think I would.... Then Alexa said, "How come we didn't get on the bus?" I told her because we don't go to school. She said, "Yeah, I have to be 5 1/2." Then she said, "I'm going to miss Asher." I cried all the way home.... Should have brought kleenex.... Now it is only 8:30 and I'm so anxious for him to come home. I wonder what he is doing right now. Well, 6 1/2 hours before I am at the bus stop picking him up.... Till then....
Posted by Steph in
0 Kindergarten, on Saturday, August 2. 2008 at
Posted by Steph in
0 Kindergarten, 1 Year Post-Treatment, Feelings, Tests, on Wednesday, July 23. 2008 at
He is very inattentive.
This was repeated to me a lot, today, while I heard the results of Asher's neuropsych evaluation from last month.
I know....I know....I'm worried about it. It has gotten worse over the last year, too. She told me he should be okay, depending on the teacher, this year in Kindergarten, but to be prepared for the possibility that he may need medication.... (Nothing can prepare me for that.) She said he will need to sit right by the teacher; if there are rows, he should sit in the very front. She said sometimes in kindergarten they sit in a circle though....
Other than that, which is a pretty big problem for him starting school, he is average or above average on most of his testing.
He is very visual. He will do awesome at visual learning.
He is below average when it comes to verbal stuff. If he hears a story, he can't repeat it back, for instance. But, if he is given a choice (i.e. was it a brown dog or a black dog in the story?), he will do better. And, he can't list things. For instance, if asked, "List as many animals as you can," he will say, "Lion, 2 lions, 3 lions," until the doctor says, "OK, more," and then he will say, "Rhino, 2 rhinos, 3 rhinos." When asked for a grocery list, he said, "Strawberries, strawberry shortcake, strawberry cream...."
She said she doesn't see Asher asking for help or clarification if he needs it. She said he would just sit and do it, best he could, but maybe do it wrong, and then be crushed (disappointed) when he is told it is wrong.
She also said he is a 'serious' boy, although, a few times he purposefully answered with wrong (not pertaining) answers, and then smiled at her. One time he started whining and she told him to stop whining and he did. She said he took it fine; his feelings weren't hurt. She said he needs a gentle but firm teacher, and he needs big praise for success!
He has a good memory, she said.
His IQ is exactly the same, testing on 2/07 and 6/08. I think she said it was 98.
She said he is VERY shy and will be for awhile till he gets comfortable with the teacher and other kids. She said, most likely, when the teacher calls on Asher he will just stare at her and not answer (he did that to her at times, she said).
She said she also noticed he was clumsy when he walked. I told her I noticed the same thing when he has shoes on. It seems to have gotten worse, over the last year. He trips over his own feet. She said he should have a PT evaluation, as well as a OT one and a speech one. She feels he doesn't talk or understand speech real well / doesn't have a varied vocabulary (not sure how to say that). I don't know about that. I don't understand, after all this time, why they are waiting till now to recommend these evaluations. Why couldn't the oncology team recommend/order the evaluations prior to now, only 10 days away from school starting?
She also said I should call the school and discuss the IEP ("Individualized Education Plan")....or even a "504 Plan." He definitely qualifies, she said (even without radiation). She said once it is in place, it is good for up to three years. The fact that I would have a bunch of tests already done, at PCH, would be helpful, as the school gets so busy, she said. Although, if the school wants to test themselves, let them, she said. I don't know why I haven't wanted to do this....I'm so reluctant....
I'm feeling pretty emotional today, deep inside. It isn't just that my baby is starting school, it is my baby that had a very serious illness that is starting school....
I don't want to let him go....
I'm excited for him, though....really....all that he will learn....the friends he will make....
I'm just scared, in general. I need to let it go, though, because I know Asher can sense it. We are very close that way. Maybe I can double dose on the Zoloft for a month or so. Hahaha. Wouldn't it be nice if there was a magic vitamin to take all anxiety away....
On a great note....Asher and I were in Anaheim, CA this past weekend at a National (model) Train Show and Disneyland. We had a great time, a really great time. We even flew instead of me driving 11 hours, so we got more time in CA Wonderful memories for the two of us.... I wish Scott had wanted to go, so that we could all have been together, but, I loved the one-on-one time with just Asher, too. I'm glad for those memories.