Posted by Steph in
Chemo Round 5, on Saturday, February 3. 2007 at
Saturday & Sunday - Day 1 & 2
5:30pm or so after foley comes out - 2 hours saline fluids
6:30pm 7:00pm Zofran (every 6 hours to follow)
5:15pm 8:00pm (after shift change, which means later than this) Etoposide by IV & Mesna over 2 hours
7:15pm 10:00 pm Cyclophosphamide over 1 hour
9:15pm midnight Furosemmide (Bolus)
pee every 2 hours
Monday - Day 3
high dose methotrexate over 4 hours (15 minutes prior to HD-MTX sodium bicarbonate over 15 minutes)
24 hours from the beginning of MTX, Leucovorin every 6 hours till MTX is less than 0.1
about Day 10
begin daily Neupogen shots when MTX level is less than 0.1
Posted by Steph in
Chemo Round 5, Counts, Tests, on Saturday, February 3. 2007 at
Asher got his room around 2pm, non-window side right across from the nurses' station. At least they found us a couch as the room next to us had someone check out after we arrived.
Asher had a hearing test around 4pm. He participated wonderfully, as always. The gals loved working with him. After it was over the one gal wanted to go over it with me. This was the first time and she said he will need a hearing aide in his left ear when he is all done with treatment. "For now, just talk into his right ear," she said. I swallowed what could have been lots of tears and smiled and said, "OK." We expected this and at this point I'm just thankful he isn't completely deaf in the left ear.
Then, since GFR tests are only given Tuesday - Thursday (I'm just now told this) Asher just got a Foley Catheter(6:30pm). His urine will be collected for 24 hours and then he can immediately start chemo, so probably around 7pm tomorrow night, although, that's change of shift, so maybe he won't get to start till 8 or 9pm. I'm going to push for the day nurse to give it before she/he goes home though. Don't like having chemo so late in the day.
Now...the oncologist came in to discuss the hearing test results (unfortunately, just as Asher was getting versed and we were headed to the treatment room). He said, "I'm shocked. We didn't expect this as his tumor was not specifically on one side of the brain. I just got off the phone with Dr. Finlay (the man who I have talked about before, the one that has developed the Head Start protocol Asher is on)...." Here is the summary of the short conversation: Asher will NOT be getting Cisplatin this round because he has more than 50% hearing loss in his left ear. Cisplatin is extremely ototoxic, which means on a scale from 1-10 as far as affecting hearing loss, Cisplatin is a 10.
I'll add more if I can remember what else was said....Asher's dinner is here, gotta go.
Band Neutrophil 2
Posted by Scott in
Chemo Round 5, on Thursday, February 1. 2007 at
As Steph said, Asher did not get platelets tonight. From what I understood of the conversation i had with the doctor while Asher was crying in my arms and in my ears, the hesitation is that they don't want Asher to become 'Platelet Refractory'.
Basically what this means is that in some people, the more often you get platelets, the less they help each time you get them. Ultimately, they stop doing any good and you run the risk of just not having any platelets to control your bleeding.
With us being so close to transplant, the doctor felt that we should hold off until absolutely necessary because we'll be needing tons of blood support during transplant and THEN is when they want the platelets to stick and do good.
Steph did an awesome job getting Asher to calm down tonight. Asher was sooooo upset at his owie and finally calmed down after she was done on the phone with him.