Posted by Steph in
1 Year Post-Treatment, Sleep Issues, on Saturday, December 13. 2008 at
In any case, we went from having sleep issues with our child, to finding out he had a brain tumor. OK. When a kid with a brain tumor lays down, the pressure builds up in his head and he gets a headache. Yeah, that would make me get up and cry and scream and crawl into bed with my parent, too. Although, hard to say, when did the tumor start growing?
In any case, we have never been real strict with Asher about staying in his own bed. I always figure, I just want him to sleep.
Once done with cancer treatment, home, and no more cancer in his head, things were okay. He still woke up in the night and found the king bed. Most nights. Some nights he actually slept in his own bed all night and we would be shocked. In the end, Scott didn't care. I was happy in my own bed in my own room; I didn't care. We're all good.
Now, something new has started, though. Worth noting and now tracking, to see how long this continues.
Monday night, November 17, 2008....this is when it began.
About 50 minutes to one hour after going to sleep, every night, Asher wakes up crying and screaming. When I go into his room, he is crying and screaming uncontrollably. He looks scared. I look into his eyes and I can feel the fear. He is all sweaty, but does not have a fever. After eight nights of this happening, I realized he was asleep, not awake. Any words he spoke could not be understood. One night he even pointed as he mumbled something, eyes as big as they could be. But he can't have a conversation with me. He doesn't seem to hear me or answer me. He shakes a bit. He continues to cry and scream, whether picked up, taken to the toilet, taken downstairs to check his temperature, etc. It does not last too terribly long, maybe only five minutes. And, in recent nights, he is more easily woken and if I give him a drink he goes right back to sleep, instantly. In the morning he never talks about these 'episodes.'
After half mentioning this to a few people, including a nurse at the hospital after his MRI, the term "night terror" was brought to my attention. I've read some on it tonight and it sounds exactly like what he is experiencing, however, not too far into his sleep. About an hour. As for what is causing it, not really sure. However, he has been sick with colds and ear aches/infections, which may have coincided with this starting. Also, yes, he tends to be quite tired by the end of the night, but he goes to bed around 6:30pm on a school night and 7:30pm on a non-school night. He's getting 12 hours of sleep on a school night. I have a strict routine. Especially now that Scott works late into the night, I put the kids to bed and they know the routine.
In the reading I did, it says this can be common in kids his age, and he can outgrow it....that would be good.
Just an update - 9/19/10 - Asher is 7 1/2 now - he is still having these, I'd say at least 5 out of 7 nights of the week, but seems to be only during the first hour of going to bed (not other times in the night). He is now walking, downstairs, at a very fast pace when he awakes, and I generally wake him up and take himby the hand back upstairs. Or sometimes I just take his hand and put him back to bed, I'm not sure if he is waking up. Also, one night I tried to wake him before a night terror began and it looked like I was too late and he freaked out, looked very scared, and just couldn't get rested back in bed. He kept getting up and I had to keep putting him back to bed. He is going to bed in his own bed now and staying in his own bed all night. I do think, he could use a nap during the day, but unless I take him for a drive, he wouldn't sleep. I'm not sure what to do....I guess just keep taking him back to bed.... I walked in my sleep, and did weird things when I did, when I was a child, so I suppose he is getting this from me....sigh.
Hi Steph, I think my son Alex has the same. I also made the mistake of allowing BOTH of my children to sleep with us in fear of SiDS, the Crib was never used and I just gave it to my newbie nephew a few mths ago. Alex woke up yesterday crying crying and more crying.. i couldn't calm him down and i splashed water on his face.. he proceeded to go to the bathroom and pull down his pj's and did peepee right on the floor, still crying. My husband finally gave him some juice and carried him to his bed and that was it.. he gets that every so often and it knocks me waay out of bounds..
Ava had a period of time right after Erik was born when she did this night after night. Very freaky. In her case we finally decided that her sleep was being disrupted by Erik's crying. It did pass. Good luck.
My grandson has had night terrors since he was 5 months old. Only reason they found out at such a young age is that he would cry so much, he would stop breathing. It was quit scary.
After they told us what it was, I researched online and something that helps control his terrors and reduce them alot was having nothing on his feet and making sure all the covers were not tucked in. Also making sure he had a small glass of milk before he went to sleep.
Now that he is ten, he walks and talks in his sleep but he gets that from me. To this day I talk in my sleep and if you ask me a question, I will answer it but don't remember any of the conversation.
There are other ideals to try but I can't remember what they were. I found those two worked and meant he wouldn't have to take any meds for it.