Posted by Steph in
0 Kindergarten, 1 Year Post-Treatment, on Saturday, September 6. 2008 at
update Saturday 9/6: 101.8 fever still, at 12pm Saturday. Slept from 8:30pm last night to 9:30am this morning. Not eating more than 2 bites a meal. Drinking though. Tylenol has been keeping the fever away, ever four hours, and he ate a huge dinner, but he went upstairs, shivering, to the den and fell asleep on the couch within minutes and by 6:30pm his fever reached a sudden 105.1, freaking me out, but Motrin took it down to 101.5 by 7pm....still no obvious reason for the fever, so watching him closely.... by 8pm his fever was gone (temp around 99.6) and he wanted some chicken noodle soup, and now 9pm and he doesn't sound tired....yay motrin....now hoping Scott will watch him around 11pm in case that fever returns, because I'm going to bed, only got about 3 hours of sleep last night with the ding-dong ditchers (who TP'd our front yard and then rang our door bell) at midnight and me not being able to fall asleep till almost 2am, and then Asher up at 5:30am with a fever and Andrew waking up a few minutes later and then heading out to mow the front yard and get the toilet paper outta my trees and bushes....
update Sunday 9/7: 101.5 fever at 5:30am and at 12pm....woke up from a nap at 2:30pm all sweaty, so maybe the fever is finally gone for good....well, no, wrong, 7:30pm temp at 101.5 and climbing, gave more Motrin....
update Monday 9/8: I fully intended to keep Asher home from school today, because of his fever through the evening yesterday, but I wasn't expecting him to wake up crying with a fever so high the forehead scanner thermometer (what is that called?) had "HI" as the readout, instead of a number! For some reason when Asher gets a fever, one side of him is 2 degrees hotter than the other. So one side read 104 and the other "HI"....you get the idea. I used an underarm read out of 104.5 to make sure I was getting the right number then. Motrin worked its magic, though, and he slept through the fever coming down to 99. I can deal with fever associated with a reason for a fever, but it is another thing for me to emotionally, rationally deal with a fever with no known cause. So, my anxiety was going through the roof this morning, and I was almost in tears about it. Before Asher's cancer diagnosis, I was a very laid back mom when it came to illnesses. I figured things would run their course; no need to rush to a doctor. Nothing bad would ever happen to my kids. Lately I have been thinking about the worst possible things a fever could mean and I've had nightmares the last two nights about very odd things.... Anyway....he is eating just a little today, and drinking okay, and he is playing and playing since 10am, once he got up, along with another dose of Motrin. He has a pediatrician appointment tomorrow at 12:30 if his fever persists.
Update Monday Night: Motrin is doing its job, with only 2 doses so far and one more before bed here, soon. After dinner, which he ate a very small amount of (again), he did three homework sheets. He is always so happy to do them. I have his supplies in a box for him, which he says his school box. He got it out and did very well on his homework with me just reading the directions to him. He had to circle ten pictures of things that started with the letter T. Each time he said what a picture was, he said, "t-t-t-t-t" for the sound if it started with T and then he circled it. His teacher is doing an awesome job of teaching him and I'm so proud of him, that he will show me what he knows and is enthusiastic. I notice very little frustration. He erases an error and tries again. He never used to be like this. Of course, I have him do home work on days he has not been in school. I have no idea how he will do once he needs to do some on a school night (those nights are a challenge). Anyway....we'll see what the morning brings as far as a fever goes. Sometimes it is hard because I think, "Oh, he had Roseola as a kid," or blah blah blah, and then I remember, oh yeah, we had to start over. He has no immunities, as of 3/13/07, his immunities were wiped clean. Like that of a 1 1/2 year old toddler now, but he's in kindergarten. Also, he can not have the measles vaccine or chicken pox vaccine until after 3/13/09, so I worry a little bit more about him being exposed to those illnesses....as well as a few others where he just isn't caught up yet. Oh....and something cute....Asher went up for bath and he immediately got the armpit thermometer and took his temp and told daddy, "This is what my number is under my armpit."
update Tuesday a.m.: Another 105 fever at 11pm (daddy didn't give the Motrin before bed, thinking he may not need it)....this morning his temp was 100.6, not too bad, but gave him Tylenol....he'll go to the doc today just to make sure nothing needs antibiotics.
update Tuesday 2pm - doc test for (1) strep (negative), (2) mono (full results not back yet), (3) pneumonia (negative)
update Tuesday night: So, still no answers to why the fever. It was 101 this morning I gave him Tylenol. It was 100 at the doctor's office at 12:30pm, but, on the way out of the room, he grabbed his tummy in pain and his fever spiked up again. The doctor got to see it (glad!) and she had the nurse give him Motrin then, so when he got home, his temp was 98.7 on the button. The doctor reminded us that he will have 2 year old illnesses "again." She said we did right, day 4 of fever, go to the doctor. That is when they can start to test to rule things out. But, if the fever isn't gone by Thursday, then we need to take him back in Friday because after day 6 of a fever, all sorts of other things could be the cause (her words). Anyway....part of me is hoping this is just roseola....which he had at 13 months....I'm going to sit and watch for that chest rash. When asked if Asher could go to school tomorrow, her answer, "Oh no! He's too sick." She is supposed to be faxing a note to the school. He's been pretty moody today....been a long day....I think he's tired.... So....we're waiting for the blood test for mono to come back. If that is negative, then we'll take him to a nearby lab and get more blood taken so a full workup can be done.
update Wednesday: Asher woke to a 100.5 fever, not too bad. He had motrin last night around 10pm and then this morning at 7am or so. It is now 3pm and I'm not giving Motrin unless his fever returns. We shall see how the night plays out.
update Wednesday night: When Scott got home, he carried Asher upstairs (Asher said he couldn't walk)....we had been playing sequence for kids....Scott set him on the bed and turned around and he was asleep the next breath. I went up there and started talking to him and Scott said, "He's already asleep." Well, I woke him up, because I remembered he didn't eat (he had refused dinner at 5pm). So, it is 7:30pm now, and he's eating some food. He went from 11am until 7:30pm without eating. Not normal for him. He still hasn't had anymore Motrin or Tylenol. His temp has been fluctuating between 99.6 and 101.3, and I'm watching it closely. We're getting to that magical point of having to call and bring him back to the doc; if he has a fever tomorrow, we have to call for an appointment for Friday morning. I have been lifting Asher's shirt all afternoon, and into the evening, hoping for a rash. With the lack of 'high' fever returning, I was hoping for a sign of rash that would be the end of roseola. Anyway....off to bed....
update Thursday: mystery fever has vanished....bye bye fever....Asher will be going to school tomorrow
update 9/15: after the fever broke, a cough started....just in the morning at first....but now all day, and a pretty rough cough....poor guy....
Hoping the fever goes away REALLY fast Asher. Feel better!!!
Ahhh, shucks, here's hoping that fever will go away soon and stay away. We love you and send big hugs your way!
Slightly worried here, Steph. I hope Asher's better by now. Cade ran a 102.5 fever for 4 days last week, only controlled by Tylenol. It finally broke right before I was ready to call the doctor. I hope Asher's all better by now. Being a mom is tough sometimes!!!!! Hugs, my friend!
Sending prayers and hugs that Asher gets better soon.
Love, Tracy & John