Posted by Scott in
Chemo Round 6 & Transplant, Counts, on Saturday, March 24. 2007 at
Day 11 post stem cell infusion
Asher continues to not have any fevers and he continues to heal up.
Albumin Serum 1.8
Asher probably will get platelets later on today, depending on if the Dr's want to do it tonight or in the morning. As of this writing, they haven't done rounds on Asher yet to decide.
Everything else, according to the nurse, looks really good.
-- Update 21:00 --
I'll try and recap the day as best I can.
At about 9:30, we got Asher up for the day and proceeded to give him a shower and a dressing change. Yesterday, Steph and I had figured that this would be a good day for me to head home for the day to spend time with her and the girls (as it had been 21 days since the girls saw mom and dad together) and have someone sit with Asher in the hospital. At about 10am, Grandma Eunice and Grandpa Jerry came by the hospital. Initially, I was really hesitant to leave Asher for the day. Mainly because of the nurse we were assigned. Neither Steph nor I really cared for this nurse, but ultimately, it ended up working well and I got some high praise remarks from Grandma/Grandpa when I returned. It appears that the nurse handled things very well, was prompt, and very thorough and did everything I had requested prior to leaving. It sounds like the same nurse is back on Sunday, so I bet we'll have that same person again.
After teaching Grandma and Grandpa the ins and outs of being in a transplant room, I headed home, but was sure to check in every couple of hours to see how things were going. Ultimately, things turned out okay, but there were a couple of rough patches.
With Asher's platelets so low, and having his morphine discontinued, Steph figured he would be tired today and having withdrawal symptoms from his morphine, and sure enough, Asher conked out shortly after lunchtime. When he woke up, he was pretty upset. We were able to get his button pushed twice, giving him a short burst of morphine and that seemed to do the trick and he played pretty good the rest of the afternoon. I had actually forgotten to mention the PCA button and thankfully the nurse was able to come in and show them how to push it.
During the middle of day, the nurse noticed that Asher had a blood in his runny nose, which he had been having for a couple of days. With his platelets at 22,000 to begin the day, he decided it would be a good idea to call the doctor and see about getting the platelets today instead of tomorrow like the doctor had initially planned. The platelets were hung around 5:30-6:00ish and infused over about 90 minutes after Asher had been premedicated with Tylenol.
When I came back to the hospital, the day nurse told me that Asher had started coughing during the infusion of the platelets. I talked to the night nurse about this and she indicated that really the only reason kids had this reaction was that if it was an allergic reaction. To make sure didn't get worse, she gave Asher a dose of hydroxizine, which has antihistimine properties. Asher only caughed once after he got the hydroxizine, so something worked. I remember that kids can sometimes have a reaction to platelets from certain donors but not others.
When I walked into the room, Asher immediately gave me the update on his hot dog that had been ordered from the cafeteria. Apparently, they had forgotten to give him mayo. Over the next hour, he kept asking me to go downstairs and get him mayo. I told him I'd go and get it if he'd take a bite, but he didn't want to, so I didn't. I didn't really think it was safe to get mayo from the community dispenser anyway...
Also, I showed Asher one the things I had brought from home per his request. I brought Spaghetti-o's with meatballs. After talking to mommy around 7:45pm, he asked to eat them about 8pm and one of our hospital-friends Suzie was able to get one of the kitchen people to open the can. Asher actually ate some of them too! He ate one meatball and about 10-15 circles of noodles. He washed it down with a single drink of water. Not bad for a "first meal" Now the key may have been the talk with mommy 15 minutes prior....as she has told Asher to "take a few bites and drinks" and "do the best you can" because "if you eat you can go home much sooner." So, she's thrilled he is eating!!! Yeah!
Asher was pretty exhausted, I could see, from playing with Grandma and Grandpa and he just crashed now at 9:00 after watching some shows on Disney Channel. It sounds like they played with most of the toys in the room and made a bunch of balloon figures out of the long 'balloon animal balloons' that we have here. Also, Child life came by with a CARS balloon. From what I heard, Tigger and another character were around the hospital and they peeked in the window at Asher from the anteroom, but he was sleeping. Asher wasn't really interested in playing with me when I got back and he just wanted to talk, sit by me for a few minutes, and watch his TV shows.
Here's what's going on with the medicine at the moment:
The ativan, hydroxizine, morphine, narcan has been stopped
the zosyn will be stopped sunday
This leaves Asher just on the three antibiotics (flagyl for the cdiff, and Linezolid for the enterococci, and acyclovir) and one antiemetic (zofran). He's still on the Zofran, but the doctors want to discontinue that. I think I'll talk to her tomorrow and ask that it stay a couple of more days, depending on how he's feeling. He's come off of so many meds all at once that we're expecting that he'll start to have some small withdrawal and we'd rather not re-introduce nausea into the picture, as the antibiotic may cause some nausea.
Asher had one medium sized poop today, and is keeping up with his intake of fluids.
Before bed here, I put the room back to it's normal configuration. I had moved things around yesterday to do some cleaning and arranging and tried a new configuration with the bed over by the front wall and the trash can. To make it work, I basically had to sleep on the couch backwards and that didn't work very well, so I'll go back to the way that's actually more comfortable. I got one of those yellow-eggcrate-foam-mattress-cover-things to fold in half on top of the couch for this stay and it does make a difference and makes this couch a little bit more comfortable. Thankfully, I am still able to get a good amount of sleep here at the hospital and will be trying to stay at night as much as possible I think in the coming week, assuming Steph and I can work out the logistics of coming and going. Once I know what a noise is, I can pretty much sleep through anything.
Anyway, Asher will hopefully get a good platelet boost for Sunday and should have some more energy. It will be interesting to see if he's cranky from being off all of these medicines so fast.