Posted by Steph in
Chemo Round 6 & Transplant, Counts, Infection, on Monday, March 19. 2007 at
Day 6 post stem cell infusion
1:00 - 1:30: Asher threw up on his pillow and himself. I didn't even hear him cough let alone vomit, neither did the nurse. I woke up to go to the bathroom and noticed his diahrea and changed his diaper and he said, "Mom, change my pillow." He also needed new wrap/gauze around his dressing then too. His temp was up to 39.1 but by the time all the bedding was changed, I had cooled him with water on a wash cloth, and another bolus finished, he was down to 38.7. He took more Tylenol like a trooper.
He's actually had a few pee only diapers in the past few hours due to the boluses. Hopefully he feels a bit better too. I remember around midnight, or so, he sat up to throw up but nothing came up so he laid back down.
4:30 - 5:00: Asher threw up and, of course, more diahrea. The night nurse was by his side and taking care of him. After he throws up now he says, "I all better. I all better, Mommy." Boy does that bring back memories. He used to say that when he had all those morning vomitting episodes prior to his diagnosis.
Then he says, "I want to sleep."
His fever is up to 39.6 (103.2) and he is receiving platelets right now. The nurse tried to give him Tylenol and he said, "I want mommy to do it." Sure thing, buddy. I wish I could do more than that.
Asher has had more of what he's been having and sleeping the rest of the time.
He did have growth on yesterday's red lumen culture and they are testing it again now to see if it is still positive and adding another antibiotic (vancomycin). They should know tomorrow exactly what bacteria is in his blood.
Asher's skin graft site on his buttock is irritated, red, and I noticed it changing a few days ago when he had all the skin issues.
Asher's pulse is keeping around 140-150. His blood pressure is around 90/53.
Asher had another dose of Tylenol at 9:10.
That's about all I know this morning. Just hoping a doctor does rounds this morning and doesn't wait till afternoon to check on Asher. Asher has so much stuff hanging from his IV pole, going into his tubes, going into his Broviac, it is a bit overwhelming to see it, to think about it, and to trust the doctors. I don't like Asher having different doctors each week....at least the same NP is here during the week
17.0kg this morning at 6am
The doctor and NP were in and said Asher looks good and we just have to ride this out. He will get blood today (hemoglobin is 8.6). They are adding vancomycin and keeping everything else they are doing as well.
Asher can barely open his eyes or mouth....he tried to watch some Goofy this morning but is now asleep again. When he talks it is difficult to hear and understand him. Even with that said, whenever I say, "I love you Asher," he ALWAYS says, "I love you" back to me.
10:15 temp 39.6 (103.2)
Platelets down to 51 by 9:00; guess when he has a fever it eats them up and they are from the transfusion, so they are temporary anyway.
It's very quiet in here right now, guess I'll find something to do on my computer now. Anyone want a Hershey's kiss filled with caramel?
Asher threw up around 11:30 - lots of green liquid - yuck - but he was good about doing mouth care (biotene and nystatin, even swallowing that one) afterwards to clean out his mouth.
11:30 Temp 38.6 (101.5)
12:20 Temp 39.4 (103) - Asher has the shakes/chills pretty bad
Asher had more diahrea (contained to diaper) around 13:30. His temp is still staying high, but not going into the 40's. His pulse is a little better at 135-145 now.
After he had the diahrea and I changed his diaper and chuck (pad for the bed) he laid down and said, "I better now mommy." He's sleeping and snoring, again.
The transplant NP came in to talk to me and she had a lot to say, so let me see if I can remember it all.
They do say Asher is septic.
They gave him blood thinking it would help circulation and cold feet. This morning his perfusion (when you push on the skin and let go and see how long it takes for the color to come back) was 4-5 seconds and now it is more like 3 seconds, so that's good.
Asher has DIC (disseminated intravascular coagulation)... described as little bleeds and little clots. His PT Time at 9am was 16.6 (norm is 10.1-13.8 seconds) (really bad would be 35). His APTT was 45.1 (norm is 22.2-39.5 seconds) (really bad would be 80). Fibrinogen was 462 (norm is 200-420 mg/dL). Vitamin K can help so they are adding that to the TPN tonight and probably the next two nights and will keep an eye on it. If Asher still seems to need more assistance with his pulse / blood pressure, they will go to FFP (fresh frozen plasma).
If Asher's C.diff diahrea doesn't let up, they may go to an oral med, but at this point they know it would be very difficult to have him swallow it, and his diahrea is slowing and not as explosive. So, crossing fingers the Flagyl works on its own.
That's all I can remember right now
15:30 Temp 38.2 (woohoo)
Asher gets his second dose of vanco.
So about 3:00 pm the nurse brought in a bag that has a blanket and a "Sam I Am" doll in it. It is from the Jaydie Lynn King Foundation. About 15 mintues later I asked Asher if he wanted to see a gift and he shook his head yes and when I showed him Sam I Am he said, "I have a Game Boy game with him in it." So he wanted to play. He played "Cat in the Hat" Game Boy game for a bit and is now playing Donkey Kong Game Boy game. It was sooooo good to see him playing. He played for 1/2 hour and then wanted to go to sleep....and he started shaking/shivering again.
The NP came in and saw him doing that. About 3 hours after the Tylenol that is what seems to happen. She said Asher will seem septic again when they give the 2nd dose of vanco tonight sometime (guess she didn't know he had just finished getting it). The antibiotic attacks the bacteria and toxins do things to Asher's body. They think one more night of watching him closely and then the future vanco doses won't be so bad.
Platelet count is now 38.
17:00 40.3 (104.5), highest temp yet, took a dose of Tylenol
17:45 another gal on the transplant team (I think doctor's assistant) came to check on Asher....she said he might be septic after the third dose of vanco tonight too, each time should get better as it attacks the bacteria, which will be less each time, hopefully. She said Asher will have a chest xray in his bed tomorrow morning (when they give lots of fluids they like to check the lungs to make sure the fluid doesn't go there).
18:15 38.1 Temp, 16.2kg Weight (they said he was peeing well), I gave him a shower, then he got a dressing change
I had made Asher walk to and from the shower; only walking he did today. I forgot, PT did come earlier, just as Asher finished playing Game Boy and she said she could stretch him or no and when she asked Asher he shook his head yes.
His Broviac site is quite red. I have been asked the last few times it was changed and as of last night I didn't notice it that much more red, but tonight it was quite red. The nurse put bacitracin on it. She noticed his nose was running after he sat up from the dressing change and asked if it has been running all day. I said no. The only time he was blowing his nose was when he was throwing up it got up in his nose cuz he put his head too far down into his bowl. Anyway....wouldn't be suprised if they swab his nose tomorrow....
18:30 Asher is sitting next to Daddy (who came to visit) watching him play playstation. He's about to fall asleep now, though, already. He is playing Chicken Little. Now Asher is playing too. A little bit ago he was holding 'Sam I Am' and said, "I love Sam I Am."
18:50 Pulse is 135 and blood pressure is looking much better too (96/81 last one).
Temp 37.7, just changed another yucky diaper, this time lots of that green crap that he was throwing up has now come out the other end. His skin graft site (left buttock) had an area that looked raw....put bacitracin on it and put gauze over it, but having it in the diaper area where he pees a ton and had diahrea just isn't that great. After I got done, he said, "Thanks for fixing my butt." I swear, I have the sweetest son ever. Asher is talking a lot more and not quite as sleepy, but hopefully will go to sleep for the night now because I'm beyond tired.