Posted by Steph in
Chemo Round 6 & Transplant, Counts, Infection, on Saturday, March 17. 2007 at
Day 4 post stem cell infusion
It has been a busy morning to begin. Just before 2am I woke to Asher wanting to vomit, again, it was green and he had to work really hard to get the little bit out that came out. All diapers were just urine and looked fine. Then at 6am I woke again to Asher vomitting. Same thing, green, and he was just working so hard to get it out. Then I went to take my shower and get breakfast and the moment I walked back in the door he pointed to his mouth, wanting to vomit. Again, same thing, same amount, green....and when he was done he said, "I want the nurse to change my diaper." It was about 7am by this point and I called her in to ask for a little ativan....just do something to stop his vomitting. And then I told her, "Ready for your stool sample?" It was pure liquid and all over the chuck (thick padding we put right under his butt for when diapers leak like that) and his legs and even feet.... The transplant doctor wanted to make sure he doesn't have rotovirus (oh geez, there's that word again) or something like that. I'm beginning to think he just might have rotovirus again because of the awful odor and the vomitting, but I don't know. I'll be asking the doc if the antibiotics can cause this green bile since it started the day his antibiotics started (yesterday).
So, I took him into the shower to clean him off, with a little unwillingness on Asher's part. His skin still really hurts and now this morning he keeps saying, "I'm red!"
Asher's temp was 38.2 at 6am. The last Tylenol dose was at 8:30pm or so last night. He slept pretty well except for the interruptions to vomit.
He just did his mouth care, two of them, biotene (swish and spit) and nystatin (swish and swallow) without much complaint. He even asked for vaseline instead of being upset I was putting it on his lips. He's still awake, too, and watching TV. Maybe he can get in some playing today.
wbc 0.1 (4-12)
rbc 3.03 (4-5.3)
hemoglobin 9.1 (11.5-14.5)
hematocrit 25.7 (33-43)
platelets 54 (140-450)
rotavirus antigen negative
8:30 temp = 37.8
Asher was up from 6:00 until about noon today! Playing with balloons in bed and Sims2 with me and watching TV. He's been sleeping for about an hour.
Childlife brought paint and he's going to paints his window later today.
12:00 temp = 37.6
12:45 another explosion in his diaper, going to finally try to give him Immodium when he wakes up
13:25 wake from sleep to vomit, but not green anymore, normal bile/flem color
Transplant doctor in to see Asher and she said he looks a lot better today than yesterday. Skin is looking better and his mouth looks really good (I thought so too), still some sores there along the gums, but he is using less morphine today than yesterday and talking more. She expects his mouth to look even better closer to Monday. Nothing has grown in the cultures, but continuing the antibiotics for now.
Scott is coming to see Asher in a bit
Asher vomitted again shortly after Scott got here, around 2:30pm and then again at 3:30pm, it was yellow bile and flem. Poor guy. I held off on the Immodium and will try it before bed.
Asher handled his dressing change pretty well; again, no tape.
Scott and Asher had a good visit....at first Asher didn't want to get up out of bed but around 5pm he got up and Scott and he played and I went out for a drive. The thermometer on the SUV said it was 98-100 degrees outside between 5pm-6pm. I hadn't even realized it was that warm out. Was nice to get out, even for two hours. I went to Toys R Us and spent $14 on three activities for Asher and me to do the next few days.
When I got back I found painting on the window in the room. Asher said, "Daddy wrote my name."
I'm hoping to get Asher to take his Immodium here and then do mouth care and then bed soon.
Asher threw up just as I finished typing my last entry and since I thought he was done I thought I might as well give the Immodium....but he threw that up too, and after that he pulled his sheet back and said, "I already went, see?" That was in response to my telling him we had to stop his diahrea! I think this may have been the biggest explosion of them all. Guess I'm getting good at cleaing the mess up. Sure does wear me out. As I was washing Asher, as he lay in bed, he looked at me with a big smile and said, "I love you, Mom." Awe, he knew I was getting frustrated with all his throwing up and pooping because I was hoping by now we could have gotten it under control or even stopped. Before that he actually said, "Sorry," and then I got tears in my eyes. I told him it wasn't his fault. I know I am just very tired and then more moody because of it. Out of the last five nights, I got one good night of sleep (Thursday night). It was amazing though, afterwards, how spirited and happy and silly Asher was being. I can tell he feels so much better once it is out. I have to say I was a bit bummed he didn't give Scott at least one mess to clean up....when talking to Scott about it this afternoon he just said to me, "I rarely change a diaper; the nurses just did it." I, at least, have stopped getting up during the night to change Asher's diapers....I used to do it but I see the night nurses are just used to doing it and now Asher lets them too. He used to cry for me to do it (back in October when I was with him a lot).
Asher did his mouth care and I have stuck to my approval (and the transplant doctor understanding) that I would only 'force' Asher to do the Biotene and Nystatin and since he does both, properly, even swallowing the Nystatin, I agree not to do the two yucky ones and tonight he even said that after swallowing the yellow one (nystatin)...."Not the two yucky ones." Nope, just the two you do okay with buddy.
Anyway....at least I can go to sleep tonight knowing Asher has been without fevers all day today. After yesterday I thought for sure they were going to hang around for awhile, but looks like I was wrong, so far. Asher's already asleep for the night.
I successfully woke Asher up so he could take his Immodium, but he threw up first. Then I gave him a choice, either I use a little syringe to squirt the medicine into his mouth or he could drink it from a medicine cup....he chose to sit back up and drink it from the medicine cup....I told him deep breath and lay back down....so he did....and so far so good.
Asher's night nurse (same as last night) just got off the phone with the transplant doctor and she wants to make sure Asher has an antinausea med every 2 hours....so he will get zofran q6, ativan (0.5 dose) q6, and hydroxyzine q6, so he'll get at least one every 2 hours. I hope this works.
I'm going to sleep now.
The nurse just ran in here 10 minutes ago....the stool sample sent this morning that was negative for rotavirus antigen came back positive for C.diff. So, too bad he just kept down that Immodium; he can't have that with C.diff. They will start a new medicine: metronidazole (Flagyl). She said it will cause nausea....at least he will be getting an antinausea med every 2 hours.