Posted by Steph in
Development, Head Wound, Home during Treatment, on Thursday, November 2. 2006 at
The head dressing changes in PACU are going okay. Asher wakes up a bit irritable, but manageable. Monday he was mad all the way home saying, "I don't want to go home, I don't want __." That is very typical of Asher after anesthetic. No one else realizes it is, but that is his response, confusion and not knowing what he wants. Wednesday we had to go to clinic after the head dressing change and it was a long day. Asher was a bit upset we had to be in clinic, but again, some of it was just the after affects of the anesthetic...."I don't want Dr. Henry (he was convinced his doctor was Dr. Henry and I couldn't tell him it wasn't). I don't want Annie to come in." etc. He was quite thristy and the nutritionist was in the room at the time and got him water and he drank maybe 2tsp of it and then a few minutes later we were scrambling to find something for Asher to throw up in....a nurse practioner from the oncology floor had just poked her head in to visit and emptied a bag she had so Asher could throw up in the bag. Poor guy. After the social worker left the room, Asher fell asleep on me while I waited to get Asher's blood counts (they drew blood through his PICC Line). He was pretty happy when we left, helping me find the car. I saw on the news last night that we missed seeing the snow outside the hospital yesterday. I was bummed. They must have delivered it after we left at 1pm. That might have been fun for Asher.
Scott went to work for 1/2 a day Tuesday and the three kids were really good for me. I was even able to bathe Aubree and give Alexa a haircut. And, when Scott got home around 2pm I got a nap and all three kids fell asleep too!
Halloween was okay. Asher was pretty happy about going trick-or-treating, but after trying on his mask he decided he didn't want to wear the costume, just hold it. So I pushed him in the single kid stroller, with his backpack with NG feeds and his VAC sitting in the basket behind/under him. At first Asher didn't really get trick-or-treating, but then he would say, "Lets get more candy." We went to many houses, but Asher started to get cold (and tired) and so we went home and when I got him inside, he threw up as soon as I set him down. He enjoyed looking through his bag of candy and holding some of it, but didn't try to eat any. He also enjoyed watching Alexa look at all her candy and watching Aubree try to do a wiggle-worm crawl to get Alexa's candy (it was sure cute).
Asher has been walking well. His VAC hangs over the front of his walker in the carrying bag they gave us for it. It is small enough and light enough to hang there and allow him to get off the couch and walk around by himself, which he does. He's playing pretty well with Alexa, inside and outside. They have their normal fights.
I am sick with a horrible cold. Sore throat, headache, tired, and stuffed up really bad the last two days, this morning being the worst so far. I'm hoping Asher doesn't get it, but not sure how it could be avoided this time. In the past when I got sick (two times) Scott would stay with Asher at the hospital and I would stay home and stay away from Asher. Asher does have a little dry cough this morning, which is what my illness started with (and Scott said he had had a cough too although didn't get worse), so I'm just dreading the idea that Asher will be sick now. Alexa had a fever most of yesterday, over 102 before Tylenol. So, I think she is getting sick too. Not sure where we picked this up, but it is what it is and hopefully Asher won't get too ill from this.
Not too much else to update with....I'll slowly add photos to Asher's "Home in Oct." and "Home in Nov." photo journals.
I'm so glad to hear that things are going well with Asher at home. I can't imagine how wonderful it must feel to have all three kids under the same roof again!!!
I'm so sorry to hear about the troubles with getting working equipment and that you're sick. No fun at all.
All of you are in my thoughts and prayers every day! (((HUGS)))
Thanks so much for the update -I check daily to see how things are going for all of you - you all are in my thoughts and prayers daily - hope you're feeling better soon and praying that Asher doesn't get sick.
Harwood & I were happy you all stopped by Halloween night. Sure was good to see Asher and you all together. What a wonderful family you have.
Seems as if colds are everywhere right now. Hope you all get better & that Asher doesn't get it.
Talk to you later. Prayers & hugs for you all.
Still praying for you all every day. Many prayers that Asher doesn't catch a cold. I love hearing about your time at home with him.
It sounds like things are going well with Asher being home! I hope you're feeling better soon, Steph, and that Asher doesn't get sick!! I'll be praying that is the case!
Ugh on the equipment! At least you know how he comes out of it, and that's what matters! It sucks that you are sick - just no fun! You have to be exhuasted, mentally and physically... hugs to you and to all of you!
What were the kids for Halloween??? I'll check the photos!
I saw Sara's kit for you all will purchase it tomorrow!!!!
Praying for and thinking of you all!