Posted by Steph in
Chemo Round 5, Letters to Asher, on Tuesday, February 13. 2007 at
Thanks for calling me last night, and leaving me a message on the answering machine. I was upstairs putting the girls to bed when you called. I didn't even realize that was you playing the Harmonica until I called you back and you played some more. You told me the playroom director, Cathy, gave it to you and you LOVED it. How fun for you. I hope all the nurses enjoyed hearing you play since your room is right across from the nurses station.
I know I already talked to you twice this morning, but I want to call you back again so I can somehow make you feel better today. You sound really bummed today. Tired and down. I think if you ask the nurse for some oxycodone or even morphine you might feel better; it will take away some of the pain. I know you told me this morning you don't like medicine, but you also know you'll feel better with it. Maybe you can get it in your tubbie instead of in your mouth.
I talked to Daddy about getting you platelets today and blood tomorrow (if you need it). Just thinking I don't want you to have both the same day since you almost always get a fever from platelets, and your platelets dropped from 60 to 32 in one days so I'm afraid you're going to lose more today. Daddy will talk to the doctor this morning so hopefully they will get a game plan and you'll feel a bit better later on today.
Posted by Scott in
Chemo Round 5, Counts, on Tuesday, February 13. 2007 at
Asher's ANC is zero again today. He also appears to be more pale, in the very low-lit-curtain-drawn area that is his bed. He woke up this morning and vomited up a bunch of undigested stuff that was tinged with dried blood.
We had noticed that Asher had some dried blood on his right nostril, so it's possible that he had a small nose bleed that dripped into his stomach. Because his hemoglobin and platelets are starting to get low, we're going to watch him closely today for any signs of active bleeding or severe lethargy.
At least today there were a few more cells and some monocytes. Maybe they'll turn into real cells tomorrow and he'll start to climb out of the basement.
Counts from 02/13/07 05:15
wbc 0.1 (4-12)
rbc 3.21 (4-5.3)
hemoglobin 9.9 (11.5-14.5)
platelet 32 (140-450)
Total Cells counted 10
Posted by Scott in
Chemo Round 5, Counts, Thank Yous, on Tuesday, February 13. 2007 at
Monday brought seemingly unlimited energy. I have no idea where this energy came from, but it started from the time he woke up until I made him to go sleep at 10:30pm.
His ANC is absolute zero today. I really suspected that he would not have much energy and would sit lethargic on the bed, watching movies or playing Gameboy. Instead, I got the total opposite.
Counts from 02/12/07 04:00
wbc 0.1 (4-12)
rbc 3.37 (4-5.3)
hemoglobin 10.4 (11.5-14.5)
platelet 60 (140-450)
Total Cells counted 5
Our roommates seemed to have some problems last night with their son and were up with the light on past 2 I think, so Asher didn't settle into a deep sleep until after they turned the light off. I've considered and asked about getting a different room, but with so many kids coming in so quickly, the chances that I'll get something better are pretty small. We may get this room to ourselves starting Friday since our roommate is scheduled for Surgery. The really are pretty Good roommates except for leaving the light on late some nights. It wouldn't be such a problem for me since I stay up until about 2am most nights at the hospital, but with the overhead light on, Asher never really gets into a deep sleep.
Anyway, Asher has been having some diarrhea due to the stool softener that we had given him over the past few days. I had forgotten that he has a delayed reaction to it, so we kept it up until I mentioned we stopped due to this starting. At about 2am, he had a big mess, and a few times more today. he doesn't seem to be able to control it, and it seems to hurt a lot when he has to go.
The stool sample that was sent in yesterday came back negative for all of the normal sickness bacteria like e-coli, so that's a good thing. Tells us that the blood that was in there was most likely just part of bleeding due to his sores.
Steph brought over some toys for Asher about noon, and so did a friend, Brandie (thanks Brandie!!), and for the rest of the day Asher went from toy to toy to toy to toy, playing with the majority of them over and over. His favorite seems to be ZINGO, which is basically bingo with Animals and a slight twist. At one point when he was watching cartoons, he stuck his head through one of them and then took off in a drumming frenzy with some of the pieces.
Also, thank you Jennifer for mailing Asher crayons and coloring books! So thoughtful of you!
During dinner time, Asher said he wanted to eat. He licked the frosting off of one more cupcake, and then called room service and ordered himself a hot dog. when it came, he put the ketchup on it, and then proceeded to eat 1/2 of the meat. We pealed the bun off of it, so he could eat the meat while I held it up for him, and he really liked it, and he kept it down. He topped it off with some Mt. Dew.
In the evening, Asher got a little coloring kit from the playroom, and in it was a harmonica (just like Grandpa he kept saying) that he played and played and played and played. He reallllly likes it and isn't so bad at it. Once I taught him how to suck AND blow (not just blow) to make music, he went to town.
The sores in his mouth didn't get any worse today, so that's a blessing. Still only 4 of them in there. I suspect that it will still get worse as he sits at ANC zero and then comes back higher. Hopefully it doesn't get too bad.