Posted by Steph in
Chemo Round 1, on Sunday, July 23. 2006 at
After Asher's surgery, I was able to really talk to him tonight and he was calm. He would answer all my questions, mostly with nodding yes or shaking his head no. He would look at me a little too. I could tell his mouth and throat hurts, BAD! I am still telling him the truth about things and giving him simple choices.
For his oral meds tonight, I was in charge. I talked to him and decided to tell him he had a choice, which was, "Do you want Daddy to do it or Mommy to do it." His answer, "Mommy." I told him to show me his teeth....saying, "Go like this" and then biting down my teeth together and pulling my lips back (as if brushing front teeth)....hard to explain but he copied me and that is how I got his mouth medicine done.
I'm convinced we can do this. That this will be okay. Please pray he will continue to take his oral meds and for his mouth sores to heal fast and for the morphine to relieve most of the pain for him.
Please pray he doesn't have a serious infection and the antibiotics will take care of anything minor.
Around 9:30pm I told him I had to go home to feed Baby A. He opened his eyes wide and said, "OK." I said, "I will take care of Aubree tonight and be back in the morning. Sleep well. I love you. Daddy will stay with you. He will walk me to the car and be back. OK?" He said, "OK." Dana (a wonderful nurse - she took care of him after his surgery on 5/29) then said to him, "I'll stay with you while Daddy walks your Mommy to the car, OK?" He nodded his head yes.
Posted by Scott in
Chemo Round 1, Surgery, on Sunday, July 23. 2006 at
Asher is running a low grade fever (38c) and is on IV antibiotics. The CSF fluid is clear, but they are going to watch the bacteria over 72 hours to see if there is any infection in there.
We'll be in intensive care for probably the next 14 days as Asher recovers. His white blood count is so low now (.2) that he really can't fight infection himself.
We both like the environment of the PICU better because we have our own private room, and there are central monitoring equipment for them to keep track of Asher's vitals without us summoning the nurse all the time or be interrupted with someone bringing in a cart to take temperature and blood pressure.
He had Platelets last night to bring things back up to at least a minimal level. In addition, Asher finally got his Methotrexate level below .1 so we can start TPN tonight. Some nutrition finally!
His ANC is up to 200 now today, up from 100 yesterday.
Pray for a speedy recovery from this fever and for a quick healing of the shunt incision so that we can remove that infection point from Asher's body.
Weight today: 15kg