Posted by Scott in
Hospital Stay, on Saturday, May 27. 2006 at
Steph came by with Tracy and John for a while in the afternoon
For most of the morning Asher and I sat in Bed
and watched TV - the hospital had 6 or 7 channels that continuously ran disney movies. We had bugs life, shark tale, mary poppins, flubber, sky high, heffalump, and something else that I can't remember right now.
Asher continued to get his Steroid every 6 hours and he was on an IV of fluids. He went through about 2-3 bags of fluid this day.
Asher had some Pancakes for Breakfast, and Dinner and he had a ton of Teddy Grahams. He also had 3 or 4 cartons of milk (the yellow one).
All in all a boring day. Since it was a holiday, there was pretty much downtime at the hospital
Posted by Scott in
Diagnosis, on Saturday, May 27. 2006 at
2:30 arrive at Radiology
2:30 - 4:30pm - Play, fill out paperwork, watch Nickelodeon, Wait.... Play in Car.... Sit in Chair.... Wait....
4:30 pm - admitted into the patient pre-staging rooms, watched a kids movie
while sitting under a warmed blanket with Asher. Asher Fell asleep.
4:50 pm - I carried Asher into the MRI room after taking all of my "stuff" out of
my pockets. I sat him down on the table, he was bawling because
he had just woke up and I carried him into a weird room with people
he didn't know.
5:00 pm - MRI
5:10 pm - Call from Dr. Bingham - Diagnosis of Mass in Brain, It's a tumor
Told to wait in hospital because we might be admitted after Dr. Manwaring
reviews the MRI after surgery.
5:50 I was escorted back to waiting because Asher was done. He woke up very cranky and I sat with him while he recovered. We asked the nurse to bring in a portable video machine to try and distract asher while we sat there recovering from the anesthetic. Once asher recovered he was extremely hungry. He ate 5 bags of teddy grahams and 3 packages of scooby fruit snacks. (that was a trend that would continue).
7:00 First MRI review with Dr. Manwaring. He came out of surgery to tell me what he saw and what he though it could be. either a medulloblastoma or an astrocytoma. He wouldn't know until after surgery though. He did say that we caught it at a very good time. he's seen a lot of kids come in in a coma because parents had waited so long.
8:00-9:00 Steph showed up with Her Aunt Rochelle and husband Barry. They were in town for a reunion and were gracious enough to give steph a ride in. They stayed until about 11 with me and Steph more for Moral support than anything.
Steph got tired and about 11 she left with Barry and Rochelle. Asher and I waited around until about 11:45 until we were finally admitted into the 100 level ward in the general patient area. We were going to get admitted directly into the PICU because that is where we were going to end up after the surgery anyway, but all of the beds were taken.
Asher was given his first dose of medicine while we were there. which is why Asher got so hungry. Also, Asher decided he was superman, and he started pushing me around in a wheelchair. he certainly had a ton of energy! I wish I had gotten picture of him pushing me around! At one point, when the nurses were talking to admitting, they asked how Asher was doing and they were joking about how good he was because he was pushing daddy around in a wheelchair.
We finally settled into our room - room 110 and got started on our steroid treatments.
steroids help reduce swelling so that the operation can go more smoothly.
Decadron will be given over the course of 36 hours or more to help reduce swelling.
At this point, surgery should happen sunday morning. and we're just going to be waiting until that point. We are supposed to just be "normal" in the hospital, get checked every hour for vitals and increase in symptoms, and make sure we sleep with head elevated. We finally got to sleep about 1:30 am
Posted by Steph in
Diagnosis, on Saturday, May 27. 2006 at
I had just finished nursing Aubree around 5:20pm and I was walking through the kitchen when the phone rang. I saw on caller I.D. it was the pediatrician calling. I don't remember much of what the doctor said except, "There's a mass in the back of Asher's brain. We don't know what it is yet, but there is definitely something growing. Are you okay? Do you have someone to come stay with you and the girls? I told Scott to stay at the hospital with Asher in case they want to admit him. I didn't want him to go all the way home just to have to go back. They are waiting for the neurosurgeon to get out of surgery to read the films. Write down my cell phone number and call me if you need me."
I'm bawling my eyes out. "No, no, no. This can't be true." I didn't expect this. I tried to call my mom and kept getting her voicemail. I tried to find my friend, Karla's, phone number and couldn't find it, so I emailed her. I did get a hold of my mom after 10 minutes and told her, "It isn't good news."
I wanted to go to the hospital to be with my little boy but I wasn't sure, who would feed Aubree? I had just pumped some milk in the last day because I was engorged, so there were a few 2oz bottles worth. I realized there was also a small can of formula from the hospital too, in case I didn't have enough breast milk. It was breaking my heart that she would have to have a bottle, but as soon as I felt that I felt guilty for feeling it. Didn't my little boy need me more?
Alexa was following me around, "What's wrong, Mommy?" I couldn't stop crying and she didn't understand and I didn't know what to say to her.
There was some family in town because we were supposed to have a family reunion tomorrow, so my mom came to be with the girls and my aunt and her husband took me to the hospital. My sister called then and I gave her the news and she said she would go to the house to be with mom and the girls.
I got to the hospital and it was pretty late, 8pm by then. My little guy said he wanted to go home. I saw the MRI images on the computer. Then the neurosurgeon came to talk to me. I vaguely remember what he said. There's an apricot sized brain tumor, no doubt it is cancer but what type they won't know till after surgery. Surgery will be Sunday morning or earliest Saturday afternoon.
That was the news. My little boy has cancer!